I read book after book, went from one type of physician to the next, stayed in constant communication with the school, cried through psychologist appointments, hovered over homework and projects, and provided reminders to chew food and brush teeth and, believe me, there was no turning it all off at night. It was always on my mind. What should I be doing now to help my son? It caused me to be tired, stressed out, and tense to the point that my back muscles jumped when rubbed.
All of that worry and studying has done us tremendously well! My son now has a diagnosis, he has an Individualized Education Program (IEP) along with an educational support team unlike any we've ever had. I'm still learning and I'm still advocating for my son, but I'm not so worried anymore.
I am finding support as well. With the Special Education Parent Teacher Organization (SEPTO), I have been able to meet other parents with the same concerns as I. Every child is unique, but every parent shares the same concerns. To hear what other parents are going through and to also hear what makes their child so damn awesome! I felt like I was part of a unit. I shared my experiences, concerns and plans and I listened while other moms and dads did the same.
I feel like I can relax a little now! Oh, I'm ever vigilant when it comes to finding solutions to help us during trying times and my whole body shutters when I read "Main Office" on the caller ID, but I go to bed thinking of my music or fall asleep while giving myself a reiki treatment. I haven't had to go to sleep wondering what would happen next with every pounding beat of my heart. It feels amazing to have a teacher who listens to me, modifies homework, sends home study guides and actually posts the home work on the the school website!
I'm thrilled to have support and to be feeling better about where we all our right now. My son is getting to enjoy being a student, instead of crying about the hardship. The support of SEPTO makes me smile! The support of my husband during every chapter I read up upon and for dealing with the inevitable meltdown just around the corner also makes me smile. Seeing my son happy to return to school after scraping through his third grade class brings about endless smiles. This place where we all are in our lives now feels so much more freeing and uplifting and I know we're on the right path. We hit bumps in the road, but we'll make it. We have support and we have each other. With all of that, we can do anything and there's nothing that could enhance a smile more!